Our inbox has been flooded with emails from viewers and readers who told us how their lives have been affected by rare diseases. Here are some of the stories we received. Living with a rare disease ...

Like an estimated 20 million Americans, I have an incurable post-acute infection syndrome that goes by the name of long Covid. Some people refer to the long Covid experience as a “journey.” I wish ...

As a pediatrician, I’ve dedicated my career to advocating for children’s health. But when my daughter, Eliza, was diagnosed with Sanfilippo syndrome, a fatal childhood neurological disease, I realized ...

As a child, I was raised in the French countryside in the Dordogne. From around the age of five, I’d help local farmers by collecting eggs and herding cows in the fields. I was also naturally curious ...

Diagnosed at a young age with a rare and potentially life-threatening disease, one man learned the power of taking control. When South Carolinian Roger was diagnosed with paroxysmal nocturnal ...

David Soren, who's worked on 'Shrek,' 'Chicken Run' and 'How to Train Your Dragon' and directed and cowrote 'Captain Underpants' opens up about his health journey When I was a kid, I didn’t want ...

One day when I was around 40, I was driving my kids to school when my right arm and hand started tingling so badly it felt as if electricity were running through my fingers. I brushed it off, thinking ...

On a random October day in 2023, my dad’s brain just stopped working. A year later, he was gone — taken by a disease so rare that most doctors never see a single case: Creutzfeldt-Jakob Disease. If ...

If you click on links we provide, we may receive compensation. David Soren, who's worked on 'Shrek,' 'Chicken Run' and 'How to Train Your Dragon' and directed and cowrote 'Captain Underpants' opens up ...