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linkedin.com
Fighting Duchenne Muscular Dystrophy: The Inspiring Story of Decker’s Blueprint | Thaddeus Campbell
Sometimes the most important stories we tell have nothing to do with business. On a recent episode of Storage Unlocked, we shared the story of Decker Murphy. Decker is the inspiration behind Decker's Blueprint, a foundation created after he was diagnosed with Duchenne’s Muscular Dystrophy — a devastating genetic disease that progressively ...
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Top videos
Duchenne Muscular Dystrophy
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Living with Duchenne isn’t just a diagnosis. It’s waking up every day in a body that slowly does less and less of what you ask it to do. Imagine being fully aware of everything around you… but not being able to move the way you want to. They way you could before. Imagine sitting in your chair watching your friends run, jump, line up for rides, chase each other, run off from you - and knowing your body won’t let you join them. Imagine having an itch and needing to call someone to scratch it. Want
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Adults living with Duchenne muscular dystrophy - Action Duchenne
actionduchenne.org
May 15, 2019
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Living with Duchenne muscular dystrophy means facing a progressive muscle wasting disease that affects every muscle in the body, even the heart. But through everything, we still choose love, we choose light, and we choose joy. We will continue to be a beacon of strength and show others how to stay grateful and live life to the fullest. Drop a heart and spread some light. ❤️ #CaregiverLife #CaregivingJourney #DuchenneMuscularDystrophy #DuchenneAwareness #SpecialNeedsMom #MuscleWastingDisease #Dis
Facebook
Purple Gaia
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5 months ago
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Feb 25, 2020
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Duchenne Muscular Dystrophy is relentless. It takes strength, independence, and certainty, but it does not take purpose or fight. I’m reminded that perseverance isn’t loud, it’s sitting in a wheelchair, speaking life, and choosing to keep going anyway. We fight Duchenne every single day. 💙 #DuchenneMuscularDystrophy #FightDuchenne #DisabilityAwareness #CaregiverStrong #WheelchairLife #RareDiseaseAwareness #SpecialNeedsParent | Purple Gaia
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4 months ago
Facebook
Purple Gaia
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Living with Duchenne muscular dystrophy means facing a progressive muscle wasting disease that affects every muscle in the body, even the heart. But through everything, we still choose love, we choose light, and we choose joy. We will continue to be a beacon of strength and show others how to stay grateful and live life to the fullest. Drop a heart and spread some light. ❤️ #CaregiverLife #CaregivingJourney #DuchenneMuscularDystrophy #DuchenneAwareness #SpecialNeedsMom #MuscleWastingDisease #Dis
66.8K views
5 months ago
Facebook
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Adults living with Duchenne muscular dystrophy - Action Duchenne
May 15, 2019
actionduchenne.org
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Mobility support in Duchenne Muscular Dystrophy is about working smarter, not pushing harder, and planning ahead makes a real difference. In the earlier stages, walking may still be possible, but using a scooter, stroller, or wheelchair for longer distances can help conserve energy and protect muscles for the things that matter most. As walking becomes harder and wheelchair use increases, having a chair that provides proper posture, alignment, and full-body support is essential. Comfort and safe
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3 months ago
Facebook
Harrison & Duchenne - Raising Awareness of …
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Duchenne muscular dystrophy (DMD) is a devastating genetic condition that results in progressive muscle weakness, spinal deformities, heart failure and early mortality. While genetic therapies are being explored, current treatments only alleviate symptoms. However, MCW’s Dr. Brian Lin and his lab are researching a promising approach that examines a calcium channel which becomes hyperactive in DMD and how inhibiting that channel could counteract the leading cause of death in DMD patients. Learn m
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Mar 10, 2025
Facebook
Medical College of Wisconsin
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DUCHENNE MUSCULAR DYSTROPHY: WHAT YOU NEED TO KNOW Duchenne isn’t “just” a muscle condition. It’s a life-limiting, genetic disease that slowly steals muscle strength - including the muscles needed to walk, breathe, and protect the heart. 🧬 It mainly affects boys 🦽 Most lose the ability to walk in childhood ❤️ The heart and lungs weaken over time ⏳ There is currently no cure But here’s what else you should know… Kids with Duchenne are funny. Clever. Determined. Dreamers. Gamers. Brothers. Sons.
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3 months ago
Facebook
Harrison & Duchenne - Raising Awareness of …
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Duchenne Muscular Dystrophy is often described as a condition that weakens muscles, but its impact reaches far deeper. It touches the brain, emotions, and behaviours in ways that are often invisible to others but profoundly felt by the child and those who love them. Many individuals with Duchenne wake already carrying a heavy load of stress and anxiety. Without dystrophin in the brain, their fight-or-flight system fires constantly, while weak respiratory muscles make it harder for the body to na
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4 months ago
Facebook
Harrison & Duchenne - Raising Awareness of …
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When people hear “Duchenne Muscular Dystrophy,” they often think: legs, arms, diaphragm, heart. But that is just the tip of the iceberg. Duchenne doesn’t just live in the big, obvious muscles. It lives in almost every muscle in the body, quietly weakening them over time. Here’s a glimpse of what it really touches: Hips and Pelvis: Glutes, hip flexors, hip adductors and abductors – the muscles that help our boys stand, walk, run, or climb stairs. Thighs & Legs: Quadriceps, hamstrings, calves – of
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Defy Duchenne With Joshua
Science is rewriting the Duchenne muscular dystrophy lifespan. Care must catch up
May 9, 2025
monash.edu
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When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure long stretches when he’d rather be playing. She watches lose a little physical strength every day and try to find solutions to find other ways to continue with his favourite activities, if possible, or invest time into other or new interests. Parents help their child get ready for therapies when he’d rather just stay home and be
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Harrison & Duchenne - Raising Awareness of …
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It’s a heavy silence. #duchennemusculardystrophy #muscleloss #duchenne #dmd #duchenneawareness #thesilence #thewait #parentcarer #duchenneparent #wheelchair #disability #lifelimitingdiagnosis | Harrison & Duchenne - Raising Awareness of Duchenne Muscular Dystrophy
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Harrison & Duchenne - Raising Awareness of …
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Pain management is a big, and often unseen, part of life with Duchenne Muscular Dystrophy. As Duchenne progresses and muscles weaken over time, pain can become part of everyday life. It can affect mobility, routines, learning, work, family life… everything. Pain in Duchenne isn’t one-size-fits-all. It can be acute or chronic, and many experience pain in multiple areas, most commonly muscles and joints. Contractures, scoliosis, posture changes, and long periods of sitting can all contribute, and
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Duchenne Families: it’s a lot. I know. We can only do what we can do. Don’t forget to breathe out. #duchennemusculardystrophy #duchene #duchenneawareness #dmd #dmd #capacity #jugglinglife #wingingit | Harrison & Duchenne - Raising Awareness of Duchenne Muscular Dystrophy
684 views
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Facebook
Harrison & Duchenne - Raising Awareness of …
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DEXA scans play an important role in caring for people living with Duchenne muscular dystrophy. A DEXA (dual-energy X-ray absorptiometry) scan is a simple, non-invasive test that measures bone mineral density, usually in the arm or leg. In Duchenne, bones can become thinner and weaker over time, especially with long-term steroid use and reduced mobility. Weaker bones are more likely to fracture, sometimes from minor falls or even everyday movements. Tracking bone density helps the care team unde
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Embracing Imperfection and Progress in Duchenne Muscular Dystrophy
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Why Duchenne Families Are Still Waiting | Walking Strong Foundation
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "👣 Early Signs of Duchenne Muscular Dystrophy (DMD) Duchenne can show up in small ways long before a diagnosis, often in the way a child moves, runs, or even gets up from the floor. Many parents sense something’s different before they have words for it. If you notice any of these signs, it may not mean Duchenne but can mean further testing is worth exploring by having discussions with medical professionals. ⚠️ Movement clues • Not w
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "Living in a body that doesn’t cooperate is a strange kind of lesson in vulnerability. It’s needing help to scratch an itch. Help to adjust a blanket. Help to take a drink when you’re thirsty or move your own leg when it aches. It’s planning your whole day around when someone can be there - not because you want company, but because you literally can’t roll over, reach a shelf, or shift your own weight without another pair of hands. I
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "One of the hardest parts of being a Duchenne parent is watching your child wrestle with emotions that are shaped by a body that’s changing in ways they didn’t choose, don’t fully understand, and can’t control. Frustration. Fear. Sadness. Overwhelmed. Big feelings that come from muscle weakness, fatigue, pain, loss of independence, and the quiet grief of realising things are getting harder. And as their parent, you sit right there be
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Harrison’s Life with Duchenne Muscular Dystrophy | Love is not enough. It doesn’t cure Duchenne It doesn’t make the system easier. It doesn’t shorten waiting times. Not ideal with a life... | Instagram
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "If I’m being honest, I don’t always feel brave either. Especially when things change, or when the questions get big and heavy. Sometimes I’m doing all the “strong” things on the outside - showing up, keeping going- while quietly asking for strength on the inside too. And then I see you. Looking up at me with those big brown eyes, asking questions that even grown-ups wish they didn’t have to ask yet. When you ask about your life and
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "People often think Duchenne is “just” about losing the ability to walk. I wish that were true. My son can’t use his arms or legs anymore. Every movement you and I do without thinking - scratching an itch, adjusting a blanket, wiping your own face - he needs help with. Not sometimes. Every time. But what people don’t see is how Duchenne doesn’t stop there. Now it’s swallowing. Taking tiny bites. Watching closely so he doesn’t choke.
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Harrison’s Life with Duchenne Muscular Dystrophy | Join Harry and Grace open up some more blind bags. Harrison lives with a disability called Duchenne Muscular Dystrophy. It’s a muscle... | Instagram
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "Families touched by Duchenne don’t just raise a child - they walk a journey alongside them. A journey filled with fierce love, constant advocacy, late-night worries, and moments of joy that feel extra precious. They become caregivers, teachers, cheerleaders, protectors, and safe places all at once. Through every stage, every change, every unknown… they show up. Not because it’s easy, but because love leaves no room for anything less
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