What is Myotubular Myopathy, Centronuclear Myopathy
myotubulartrust.org
What is Myotubular Myopathy, Centronuclear Myopathy
Myotubular myopathy is commonly used for the x-linked form, whilst the term centronuclear myopathy is mainly reserved for the other forms.
Jan 1, 2009
X-linked Myotubular Myopathy Symptoms
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Lincoln, who has X-linked myotubular myopathy, is excelling in the fifth grade because of the Hospital Homebound program, Denham Oaks Elementary, Pasco eSchool, and the dedicated adults in his life. He is using the strength of his mind to achieve his goals and to inspire everyone who meets him. | Pasco County Schools
5:13
Lincoln, who has X-linked myotubular myopathy, is excelling in the fifth grade because of the Hospital Homebound program, Denham Oaks Elementary, Pasco eSchool, and the dedicated adults in his life. He is using the strength of his mind to achieve his goals and to inspire everyone who meets him. | Pasco County Schools
FacebookPasco County Schools
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174K views · 7.2K reactions | Lucas lives with myotubular myopathy, a condition that leaves his muscles so weak that he can only move a few fingers. He desires connection with other kids, but struggles to create friendships because he cannot do many of the things other teenagers enjoy. Lucas wants others to know that if you want to be his friend just talk to him about his interests, like board games and music. | Special Books by Special Kids | Facebook
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174K views · 7.2K reactions | Lucas lives with myotubular myopathy, a condition that leaves his muscles so weak that he can only move a few fingers. He desires connection with other kids, but struggles to create friendships because he cannot do many of the things other teenagers enjoy. Lucas wants others to know that if you want to be his friend just talk to him about his interests, like board games and music. | Special Books by Special Kids | Facebook
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