What is Rett Syndrome? If you have been following our story for a while, you know Rett Syndrome is part of our daily life. For many, though, the name itself is unfamiliar, something that sounds rare, complicated, maybe even distant. But for us, it’s not distant at all. It’s here every morning when we wake up, every therapy appointment we drive to, every celebration we have when the tiniest milestones are reached. For the month of October I am going to discuss our family’s journey with Rett, but
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What is Rett Syndrome? If you have been following our story for a while, you know Rett Syndrome is part of our daily life. For many, though, the name itself is unfamiliar, something
Magnolia's Hope. Mr2Crafty · Watching You Grow. What is Rett Syndrome? If you have been following our story for a while, you know Rett Syndrome is part of our daily life. For many, though, the name itself is unfamiliar, something that sounds rare, complicated, maybe even distant. But for us, it’s not distant at all. It’s here every morning ...
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We reached back into the archives to find this powerful video from 5 years ago that asks a question that all Rett families have asked themselves: What if? What if a Rett diagnosis didn't equate to a life full of obstacles and limitations? What if we could fix the mutation before it wreaked havoc? What if we succeeded in finding a cure and #MakingRettHistory? | Rett Syndrome Research Trust
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We reached back into the archives to find this powerful video from 5 years ago that asks a question that all Rett families have asked themselves: What if? What if a Rett diagnosis didn't equate to a life full of obstacles and limitations? What if we could fix the mutation before it wreaked havoc? What if we succeeded in finding a cure and #MakingRettHistory? | Rett Syndrome Research Trust
FacebookRett Syndrome Research
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We reached back into the archives to find this powerful video from 5 years ago that asks a question that all Rett families have asked themselves: What if? What if a Rett diagnosis didn't equate to a life full of obstacles and limitations? What if we could fix the mutation before it wreaked havoc? What if we succeeded in finding a cure and #MakingRettHistory? | Rett Syndrome Research Trust
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We reached back into the archives to find this powerful video from 5 …
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Rett Syndrome Diagnosis and Disease Progression | AJMC
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Rett syndrome never stops.. on top of her struggles, sleeping seizures, issues with breathing.. now to know her hearts rhythm is another risk of sudden death… how is this life?! Just when you think you are getting through grieving, another stone gets thrown. (Long QT) 🫀 #rettsyndrome #longqt #grief #heartbroken #momlife
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Rett syndrome never stops.. on top of her struggles, sleeping seizures…
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One day a Rett diagnosis will not equal a life sentence. We won’t rest until then. #AreYouIn? | Rett Syndrome Research Trust
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FacebookRett Syndrome Research Trust
Families affected by Rett syndrome hope they will hear their child’s voice, know how they're feeling, and see them walk and play someday. Meet the Morell, Patterson and Martin families, who share their heartfelt stories in this video. Give today to advance research for life-changing treatments to help make their hopes a reality. www.rettsyndrome.org/donate | International Rett Syndrome Foundation
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